| Our Boy Dylan |
| Click Here for Latest Update: 7/30/2009 |
Dylan's History
Our Daily Journal
Medical Records
Our Treatment Plan
Resources
Guestbook
Grandpa D
Audrey's Umbrella
On January 22nd, 2004, my 18-month old son Dylan was diagnosed with a brain stem
glioma, an inoperable brain tumor whose prognosis is dismal. After noticing my son's
right eye turning inward, my wife and I took Dylan to see a pediatric neuro
opthamologist at Children's Hospital of Philadelphia. After examining Dylan, the doctor
ordered a MRI to be done the same day. At around 6:30 pm that night, we got the
worst news of our life. The results of the MRI showed that Dylan had a diffuse intrinsic
pontine glioma. Because of the tumor's location, surgery is not an option. The doctors
at CHOP told us the most viable treatment currently available for this tumor is
radiation therapy. They also noted, however, that they do not like to radiate the brain's
of children so young. Even with the conventional treatment available, the doctors
suggested an average life expectancy of 9 to 15 more months.
Our story can be found in Our Daily Journal. Our perspectives have changed very
much over the past year, and we hope that by sharing our experiences we can both
solicit information and more importantly prayers. We also hope our site will help
people who are suffering similar situations or at least bring about awareness, hope, and
faith. As always, if anyone has any information about anything that they think may be
helpful, please let us know.
Our family thanks you for any information you might have, and we ask that you please
keep Dylan in your prayers and, if possible, please add Dylan to the prayer list at your
place of worship. To all of our family, friends, co-workers, neighbors, support
networks, and everyone else we would like to THANK YOU from the bottom of our
hearts for all of your help and support during this difficult time.
Please send any information you feel might be helpful to saveourdylan@yahoo.com .
glioma, an inoperable brain tumor whose prognosis is dismal. After noticing my son's
right eye turning inward, my wife and I took Dylan to see a pediatric neuro
opthamologist at Children's Hospital of Philadelphia. After examining Dylan, the doctor
ordered a MRI to be done the same day. At around 6:30 pm that night, we got the
worst news of our life. The results of the MRI showed that Dylan had a diffuse intrinsic
pontine glioma. Because of the tumor's location, surgery is not an option. The doctors
at CHOP told us the most viable treatment currently available for this tumor is
radiation therapy. They also noted, however, that they do not like to radiate the brain's
of children so young. Even with the conventional treatment available, the doctors
suggested an average life expectancy of 9 to 15 more months.
Our story can be found in Our Daily Journal. Our perspectives have changed very
much over the past year, and we hope that by sharing our experiences we can both
solicit information and more importantly prayers. We also hope our site will help
people who are suffering similar situations or at least bring about awareness, hope, and
faith. As always, if anyone has any information about anything that they think may be
helpful, please let us know.
Our family thanks you for any information you might have, and we ask that you please
keep Dylan in your prayers and, if possible, please add Dylan to the prayer list at your
place of worship. To all of our family, friends, co-workers, neighbors, support
networks, and everyone else we would like to THANK YOU from the bottom of our
hearts for all of your help and support during this difficult time.
Please send any information you feel might be helpful to saveourdylan@yahoo.com .
