Our Boy Dylan

Click Here for Latest Update: 7/28/2008

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On January 22nd, 2004, my 18-month old son Dylan was diagnosed with a brain stem glioma, an inoperable brain tumor whose prognosis is dismal. After noticing my son's right eye turning inward, my wife and I took Dylan to see a pediatric neuro opthamologist at Children's Hospital of Philadelphia. After examining Dylan, the doctor ordered a MRI to be done the same day. At around 6:30 pm that night, we got the worst news of our life. The results of the MRI showed that Dylan had a diffuse intrinsic pontine glioma. Because of the tumor's location, surgery is not an option. The doctors at CHOP told us the most viable treatment currently available for this tumor is radiation therapy. They also noted, however, that they do not like to radiate the brain's of children so young. Even with the conventional treatment available, the doctors suggested an average life expectancy of 9 to 15 more months. Our story can be found in Our Daily Journal. Our perspectives have changed very much over the past year, and we hope that by sharing our experiences we can both solicit information and more importantly prayers. We also hope our site will help people who are suffering similar situations or at least bring about awareness, hope, and faith. As always, if anyone has any information about anything that they think may be helpful, please let us know. Our family thanks you for any information you might have, and we ask that you please keep Dylan in your prayers and, if possible, please add Dylan to the prayer list at your place of worship. To all of our family, friends, co-workers, neighbors, support networks, and everyone else we would like to THANK YOU from the bottom of our hearts for all of your help and support during this difficult time. Please send any information you feel might be helpful to saveourdylan@yahoo.com .